Better Business Bureau Report for
Canavan Research Illinois

Better Business Bureau Report issued December 2014
Better Business Bureau Report expires December 2016

This BBB Accredited charity meets all 20 Standards for Charity Accountability. Find out more...

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Charity Contact Information

Name: Canavan Research Illinois
Address: 1434 Mill Creek Dr
  Buffalo Grove, IL 60089
Phone: 847-222-0736
Web Address:
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Better Business Bureau Comments

Year, State Incorporated: 2000, Illinois
Affiliates: None
Stated Purpose: Canavan Research Illinois is a nonprofit corporation and 501(c)(3) public charity based in Illinois, established in April 2000 to meet a critical need to support medical research to treat, cure, and improve the quality of lives of all children battling Canavan disease. Canavan disease is a rare and devastating fatal childhood neurodegenerative disorder that affects the formation of myelin, the white matter of the brain.

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Evaluation Conclusions


Canavan Research Illinois meets the 20 Standards for Charity Accountability.
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Canavan Research Illinois is responsive to the Canavan families, physicians, and researchers that contact this charity. They put Canavan families in touch with one another, and further provide information regarding clinical trials. They fund critical medical research to treat and cure Canavan disease and are devoted to the victims of Canavan disease (and their families) worldwide

For the fiscal year ended December 31, 2013, Canavan Research Illinois's program expenses were:

grants and similar amounts paid 90,000
Total Program Expenses: $90,000
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Chief Executive : Ilyce J Randell, President

Chair of the Board: Ilyce J Randell
Chair's Profession / Business Affiliation:

Board Size: 5

Paid Staff Size:

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising


Method(s) Used:

invitations to fund raising events, internet, media and fundraising events
Fund raising costs were 6% of related contributions. (Related contributions, which totaled $135,944, are donations received as a result of fund raising activities.)
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Tax Status


This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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The following information is based on Canavan Research Illinois's IRS Form 990 for the fiscal year ended December 31, 2013.

Source of Funds  
contributions, grants, gifts, and similar amounts received 135,944
Total Income $135,944


Uses of Funds as a % of Total Expenses

Programs: 76%  Fund Raising: 7%  Administrative: 8%  Other Expenses: 9%

Total income $135,944
Program expenses $90,000
Fund raising expenses 7,820
Administrative expenses 9,748
Other Expenses 10,330
Total expenses $117,898
Income in Excess of Expenses 18,046
Beginning net assets 27,926
Ending net assets 45,972
Total liabilities 0
Total assets $0

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