Better Business Bureau Report for
Citizens United for Research in Epilepsy

Better Business Bureau Report issued April 2015
Better Business Bureau Report expires April 2017


This BBB Accredited charity meets all 20 Standards for Charity Accountability and is a Seal Holder. Find out more...


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Charity Contact Information

Name: Citizens United for Research in Epilepsy
Address: 430 W Erie St #210
  Chicago, IL 60654
Phone: (312) 225-1801
Web Address: http://www.cureepilepsy.org/
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Better Business Bureau Comments

Year, State Incorporated: 1999, Illinois
Affiliates: None
Stated Purpose: Their mission is to cure epilepsy, transforming and saving millions of lives. They identify and fund cutting-edge research, challenging scientists worldwide to collaborate and innovate in pursuit of this goal. Their commitment is unrelenting.

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Evaluation Conclusions

              

Citizens United for Research in Epilepsy meets the 20 Standards for Charity Accountability.
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Programs

              

CURE is the leading nongovernmental agency fully committed to funding research in the epilepsies. Their transformative research program supports more than 160 cutting-edge projects in 13 countries. CURE invests more than 88% of its funds in its mission. Every grant submitted to CURE goes through a rigorous scientific process. Each application is evaluated on the basis of scientific merit, relevance to CURE's mission, innovation, feasibility, and likelihood to be transformative. CURE seeks to identify research aimed at curing epilepsy and lay reviewers bring a key perspective and sense of urgency to the CURE grant review process. The end result is that CURE funds the best possible science and funds researchers at all levels in their careers and from many different arenas.

For the fiscal year ended December 31, 2014, Citizens United for Research in Epilepsy's program expenses were:

  
research 5,481,492
awareness 534,253
other 157,321
Total Program Expenses: $6,173,066
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Governance

              

Chief Executive : Bogdan Ewendt, Executive Director
Compensation*: 
$224,403

Chair of the Board: Gardiner Lapham
Chair's Profession / Business Affiliation: Director, Whitman-Walker Health

Board Size: 12

Paid Staff Size: 11

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

              

Method(s) Used:

invitations to fund raising events, grant proposals, internet, cause-related marketing, Letter Writing
Fund raising costs were 11% of related contributions. (Related contributions, which totaled $1,643,848, are donations received as a result of fund raising activities.)
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Tax Status

              

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

              

The following information is based on Citizens United for Research in Epilepsy's audited financial statements for the fiscal year ended December 31, 2014.

Source of Funds  
special events 3,573,168
contributions: individuals 740,767
contributions: foundations 730,483
interest and dividends 181,509
contributions: in kind 123,370
contributions: corporate 47,240
other 8,108
contributions: other 1,988
Total Income $5,406,633


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Uses of Funds as a % of Total Expenses

Programs: 92%  Fund Raising: 3%  Administrative: 5% 

Total income $5,406,633
Program expenses $6,173,066
Fund raising expenses 181,164
Administrative expenses 366,218
Total expenses $6,720,448
Expenses in Excess of Income (1,313,815)
Beginning net assets 8,389,008
Other Changes in Net Assets 60,128
Ending net assets 7,015,065
Total liabilities 2,952,799
Total assets $9,967,864


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

This report is not to be used for fund raising or promotional purposes.

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