Better Business Bureau Report for
Kentucky Hemophilia Foundation

Better Business Bureau Report issued April 2018
Better Business Bureau Report expires April 2020


This BBB Accredited charity meets all 20 Standards for Charity Accountability. Find out more...


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Charity Contact Information

Name: Kentucky Hemophilia Foundation
Address: 1850 Taylor Avenue, Suite 2
  Louisville, KY 40213
Phone: 502-456-3233
800-582-2873
Web Address: www.kyhemo.org
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Better Business Bureau Comments

Year, State Incorporated: 1960, Kentucky
Affiliates: None
Stated Purpose: The Kentucky Hemophilia Foundation was formed and continues for the purpose of assisting and improving the quality of life for individuals with hemophilia and similar inherited bleeding disorders residing within its jurisdiction.

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Evaluation Conclusions

              

Kentucky Hemophilia Foundation meets the 20 Standards for Charity Accountability.
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Programs

              

Advocacy: The organization’s advocacy programs include Kentucky Hemophilia Advocacy Day at the Capitol, cooperative linkages with other community-based service providers, a Speakers’ Bureau and monitoring legislative and insurance activities. Outreach: Programs include a birthday greetings program, clinic visits, first step outreach to families with newly diagnosed children, on the road outreach to rural areas, peer outreach and outreach to women with bleeding disorders. Information & Referral: Programs include a toll-free "800 Answers" Line, e-news, Facebook and a website Education: Programs include annual education meetings, seminars, educational literature, video library, health fairs, bulk mailings and e-mailings, presentations to schools and community groups Scholarships: Awarded for post-secondary educational pursuits Support: Programs include bicycle helmets and other child safety items. Also, clinic, home, and hospital visits. Other support programs include emergency financial assistance, family Day at Louisville Zoo, a men's retreat, a women's retreat, youth programs, a family holiday event, mentoring, phone support, an e-support network and sponsorships to educational and support meetings. Summer Camp: The organization offers a residential, recreational and educational program for children and youths, ages 7-17, who have a bleeding disorder and their unaffected siblings. Hemosphere newsletter: Published periodically offering education and information on foundation event and activities. Cultural and Recreational Enrichment Scholarships (CARES): Scholarship awards for cultural and recreational activities for children with hemophilia or von Willebrand disease, up to age 15.

For the fiscal year ended June 30, 2017, Kentucky Hemophilia Foundation's program expenses were:

  
Program Services 210,402
Total Program Expenses: $210,402
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Governance

              

Chief Executive : Ursela H. Kamala, Executive Director
Compensation*: 

Chair of the Board: Deborah L. Hitt
Chair's Profession / Business Affiliation: Retired Project Manager at Humana, MBA

Board Size: 9

Paid Staff Size: 3

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising

              

Method(s) Used:

Direct mail, invitations to fund raising events, print advertisements, grant proposals, membership
Fund raising costs were 5% of related contributions. (Related contributions, which totaled $351,369, are donations received as a result of fund raising activities.)
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Tax Status

              

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Financial

              

The following information is based on Kentucky Hemophilia Foundation's audited financial statements for the fiscal year ended June 30, 2017.

Ending net assets as reported below include $342,861 in unrestricted net assets and $40,022 in temporarily restricted net assets.

Total assets as reported include $107,930 invested in building and equipment, net.

Source of Funds  
Grants and Contributions 231,996
Special Events, net 119,373
Miscellaneous Income 23,900
Interest Income 131
Total Income $375,400


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Uses of Funds as a % of Total Expenses

Programs: 82%  Fund Raising: 6%  Administrative: 12% 

Total income $375,400
Program expenses $210,402
Fund raising expenses 16,039
Administrative expenses 29,991
Total expenses $256,432
Income in Excess of Expenses 118,968
Beginning net assets 263,915
Ending net assets 382,883
Total liabilities 66,240
Total assets $449,123


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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

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