Better Business Bureau Report for
Kids with Heart NACHD, Inc

Better Business Bureau Report issued July 2016
Better Business Bureau Report expires July 2018

Does not meet one or more standards
This charity does not meet one or more of the 20 standards for Charity Accountability. Find out more...

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Charity Contact Information

Name: Kids with Heart NACHD, Inc
Address: 1578 Careful Dr
  Green Bay, WI 54304
Phone: 800-538-5390
Web Address:
Also known as:Kids with Heart
Kids With Heart National Assn for Children's Heart Disorders, Inc
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Better Business Bureau Comments

Year, State Incorporated: 1999, Wisconsin
Affiliates: None
Stated Purpose: Our organization was formed in 1985 with the main mission of providing support, information, and education for the families of the children living with congenital heart defects and to promote public awareness of the issues that these families live with on a day to day basis.

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Evaluation Conclusions


Kids with Heart NACHD, Inc (KWHNACHD) does not meet the following 3 Standards for Charity Accountability.

Standard 6: Board Policy on Effectiveness - Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.

KWHNACHD does not meet this Standard because:

  • The board of directors does not have a written policy stating that, at least every two years, an appraisal be done assessing the organization’s performance and effectiveness and determining future actions required to achieve its mission.

Standard 16: Annual Report - Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.

KWHNACHD does not meet this standard because:

  • The organization states it does not have an annual report covering activities conducted in the past year.

Standard 17: Web Site Disclosures - Include on any charity websites that solicit contributions, the same information that is recommended for annual reports, as well as the mailing address of the charity and electronic access to its most recent IRS Form 990.

KWHNACHD does not meet this Standard because the organization's website,, does not include all of the recommended information for those charity websites that solicit for donations. Specifically, it does not include:

  • Total income.
  • Total program expenses.
  • Total fund raising expenses.
  • Total administrative expenses.
  • End of year net assets.
In addition, the BBB of Wisconsin requested but did not receive complete information on the organization’s governance and oversight, effectiveness measures, finances, and fundraising disclosures and is unable to verify the organization's compliance with the following 11Standards for Charity Accountability: 1, 4, 7, 8, 9, 10, 11, 12, 13, 14, and 19.
Kids with Heart NACHD, Inc (KWHNACHD) meets the remaining 5 Standards for Charity Accountability. Please note that as of the date of this report 1 out of the 20Standards for Charity Accountability are not currently effective. As a result, this standard has not been applied to this evaluation.
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Toll free number for support and other information. Parent matching-coordinating registered parents with others with the similar defects. Online support at no charge, that is monitored to ensure the safest environment we can provide. Bereavement services-online support and a bereavement package for families who have lost their child. Other programs include: 1)Information and resource referral: refer families to local support groups in their area as well as assist in finding resources for their specific needs. 2) Family events in the Northeast Wisconsin area. These may include such events as parent meetings, Hayrides, Holiday Celebrations, Public Awareness Promotions such as booths at the County Fair or malls.

Total Program Expenses: $
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Chief Executive :

Chair of the Board: Michelle Rintamaki
Chair's Profession / Business Affiliation:

Board Size: 7

Paid Staff Size: 3

*Compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
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Fund Raising


Method(s) Used:

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Tax Status


This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
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Source of Funds  
Total Income $0


Uses of Funds as a % of Total Expenses


Total income $0
Program expenses $0
Fund raising expenses 0
Administrative expenses 0
Total expenses $0
Beginning net assets 0
Ending net assets 0
Total liabilities 0
Total assets $0

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An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the BBB Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the Council of Better Business Bureaus, Inc.

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